Mona Patel (@MonaP23) is currently the Communications Lead in NADSN’s Steering Committee and is the Equality & Diversity Specialist (@MMUEqualities) at Manchester Metropolitan University (@ManMetUni).  Mona is also actively committed to a number of important voluntary roles outside of work.

Mona has GNE Myopathy and recently wrote her personal story for the 7th Edition of the GNE Myopathy Disease Monitoring Programme (GNEM-DMP) Newsletter. NADSN is proud to share Mona’s insightful and inspiring story – please see page 4 here

@TREAT_NMD #GNEMyopathy

For Further Details

Email: uk.nadsn@gmail.com | Twitter: @nadsn_uk | Facebook: NatAssDSN | Web: nadsn-uk.org

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